Announcing the Fibro Warriors Podcast
I’m pleased to announce the launch of The Fibro Warriors Podcast. It all started when I interviewed Eric Landis about what it was like being the caregiver and lover to our friend and Fibro Warrior Suzanne Berg. At the time I recorded the interview, I’d never even considered creating a podcast. I was hoping to showcase my talent as a writer while at the same time, I felt strongly that I should advocate for people like Suzanne. As a volunteer writer for the Dallas Area Parkinsonism Society, I’d bought a digital voice recorder earlier in the year to make my note taking easier during their monthly meetings. You can see the articles I’ve written for them here. I took my recorder with me as a backup to my notes as I interviewed Eric for his story, and that is the recording you’ll hear in Episode 1.
Suzanne struggled for decades with opioid addiction and fibromyalgia. She entered Eric’s life just a few months before I met her in June 2015. She and I became fast friends, talking on the phone almost daily. She was like a light in my life, so bubbly and witty that I never saw the depth of her pain until her first suicide attempt in December of that year.
One month later, in January 2016, I hosted my first fibromyalgia support group meeting. On the morning of that meeting, Eric called to inform me that Suzanne had taken her life the night before. I was devastated, and I could barely talk, but 23 people were showing up to the meeting and I knew I had a job to do.
There are an estimated 10 million people in the US who are diagnosed with fibromyalgia, and it affects 3 to 6% of the world population. It is a debilitating condition with many symptoms, mainly long-term chronic pain and fatigue. And there’s no cure. In my experience leading the DFW Fibromyalgia Support Group over the past 2 years, I’ve come to realize that there are no two cases alike. In fact, the underlying conditions of fibromyalgia are vastly different from one person to the next.
My intention with this podcast is to let Fibro Warriors’ stories be heard. After I wrote the article about my interview with Eric, we both agreed it fell flat. What was missing was the passion with which Eric told this story, and I wanted you to hear that. And that’s how the concept of the Fibro Warriors Podcast was born. Let this podcast be a platform for anyone who has an inspirational story to tell about living with fibromyalgia. Please contact me if you have a story you’d like to share.
Your Input is Needed
Question for You – What do you think of this podcast and what more would you like to hear?
For example, would you like to hear interviews with medical practitioners, psychologists, fitness experts? Do you have someone particular in mind?
Please write your thoughts in the comment section below.